Schulungsprogramme zur förderung von selbstmanagementfähigkeiten bei multiple-sklerose-betroffenen

Translated title of the contribution: Patient education programmes to support self-management in people with multiple sclerosis

J. Feicke*, U. Spörhase, S. Köpke

*Corresponding author for this work


Background: People with chronic conditions as e.g. multiple sclerosis (MS) are faced with multiple challenges especially concerning self-management abilities. Since many years, patient education programmes have been considered as significant approach to support patients in acquiring selfmanagement abilities. This articles aims to give a descriptive summary on the concept of self-management and on facilitation of self-management employing education programmes specifically focusing on MS. Exemplarily, two German self-management education programmes are presented. Methods: Review based on a selective literature analysis and own research results. Results: Despite the lack of a generally accepted definition, self-management is considered as multi-dimensional construct with different views on number and nature of core self-management abilities. Analyses of existing self-management programmes have shown marked heterogeneity. Education programmes frequently aim at single self-management abilities with marked differences between programmes using differing and intransparently reported intervention strategies. Due to marked heterogeneity of interventions and outcome measures and due to limited methodological quality of studies, no clear conclusion can be drawn concerning the effectiveness of self-management interventions. Conclusion: To acquire meaningful results, development of self-management education programmes must be theory-based and based on recent methodological requirements. Apart from medical and psychological expertise, other competencies e.g. from nursing science and health education should be integrated in the development and conduction of selfmanagement education programmes.

Translated title of the contributionPatient education programmes to support self-management in people with multiple sclerosis
Original languageGerman
JournalNeurologie und Rehabilitation
Issue number1
Pages (from-to)5-12
Number of pages8
Publication statusPublished - 01.01.2016

Research Areas and Centers

  • Research Area: Center for Population Medicine and Public Health (ZBV)


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