Some outcome parameters have been shown to represent valuable measures for the long-term assessment of primary systemic vasculitides (PSV). These parameters include disease extent, disease activity, damage, and the health- related quality of life. We describe a concept for the establishment of a detailed documentation system for PSV with a duration of at least 5 years to obtain a reliable characterization of these patients. This database will provide the basis for a PSV cohort and the development of an interdisciplinary patient education concept followed by an evaluation with a multicenter, trial.
|Translated title of the contribution||Prognostic factors and outcome in primary systemic vasculitides in Germany|
|Journal||Zeitschrift fur Rheumatologie|
|Number of pages||4|
|Publication status||Published - 2000|
Research Areas and Centers
- Academic Focus: Center for Infection and Inflammation Research (ZIEL)