Abstract
Some outcome parameters have been shown to represent valuable measures for the long-term assessment of primary systemic vasculitides (PSV). These parameters include disease extent, disease activity, damage, and the health- related quality of life. We describe a concept for the establishment of a detailed documentation system for PSV with a duration of at least 5 years to obtain a reliable characterization of these patients. This database will provide the basis for a PSV cohort and the development of an interdisciplinary patient education concept followed by an evaluation with a multicenter, trial.
Translated title of the contribution | Prognostic factors and outcome in primary systemic vasculitides in Germany |
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Original language | German |
Journal | Zeitschrift fur Rheumatologie |
Volume | 59 |
Issue number | 2 |
Pages (from-to) | 131-134 |
Number of pages | 4 |
ISSN | 0340-1855 |
DOIs | |
Publication status | Published - 2000 |
Research Areas and Centers
- Academic Focus: Center for Infection and Inflammation Research (ZIEL)