Krebsregister und Gesundheitswesen: Anfragen bei Verdacht auf Krebshäufungen, Erwartungen und Befürchtungen

Background: With the introduction of the comprehensive epidemiological/clinical cancer registration based on the CancerEarly Detection and Registry Law, new opportunities are emerging to make healthcare in the area of cancer diseasestransparent to the population. As is known from epidemiological reporting, in the future, specialist departments andservice providers will be given an overview of their own treatments and corresponding comparative data via descriptionof the healthcare landscape. The (clinical) cancer registry data can be used to establish healthcare research byenabling actual and target comparisons, histories, guidelines, clinic comparisons, etc., analyses of inappropriatecare, cross-sectoral treatment routes, and population-specific implementation of therapy concepts/early detectionmeasures. Emerging databases can be used to generate hypotheses – also for rare cancer diseases or special subgroups. Materials and methods: Expectations and fears expressed by the general public and by service providers are addressed and explained. The use of cancer registry data for the assessment of alleged local clusters of cancer is summarized. Results and discussion: Further information and open discussions on the benefits of the new integrated registries are necessary. The possibilities and chances must be presented and discussed in order to minimize false expectations. The presented methodology as well as the associated risk communication can be the starting point for future clinical–epidemiological analyses.