Komplexe psychosoziale Problemlagen bei Morbus Crohn und Colitis ulcerosa - fragebogengestütztes Assessment als erster Schritt zur Aktivierung von Patientinnen und Patienten

Translated title of the contribution: Assessing complex health problems of patients with IBD - First step to patient activation

A. Hüppe*, J. Langbrandtner, H. Raspe

*Corresponding author for this work
9 Citations (Scopus)


Background: Health care for inflammatory bowel diseases (IBD), to be comprehensive, takes a broad range of patients' somatic and psychosocial problems into account. Patients should be actively involved in health-care planning and organisation. Methods: 431 adult patients with Crohn's disease (50 %) or ulcerative colitis participated in a postal questionnaire survey; 6 months apart it twice assessed the patients' individual problem profiles. The results of the assessment were back-reported to each patient combined with targeted (though standardised) recommendations for future care. This publication is the first of a series. It presents the basic study design, describes the prevalence of 16 psychosocial problem domains and analyses their association with socio-demographic and disease variables. Results: Participants had a mean age of 46 years; 61 % were female; 57 % in remission (GIBDI ≤ 3). The most prevalent problems reported addressed sexual impairments (27 %), high stress (26 %) and depression (21 %). 27 % of the respondents did not report any psychosocial problem. One in five (21 %) described highly complex problem profiles (≥ 5 "activeo" problems) combined with a mean of 28 disability days within the past 3 months. Complex psychosocial profiles were associated with active disease, Crohn's disease and low educational level. Conclusions: IBD patients show a highly variable spectrum of psychosocial problems. Their number is closely associated with disease activity and a social status variable (school education). The gradient could complicate efforts to increase patient participation in care and to enhance self-management.

Translated title of the contributionAssessing complex health problems of patients with IBD - First step to patient activation
Original languageGerman
JournalZeitschrift fur Gastroenterologie
Issue number3
Pages (from-to)257-270
Number of pages14
Publication statusPublished - 2013


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