TY - JOUR
T1 - Field testing of a European quality of life instrument for children and adolescents with chronic conditions: The 37-item DISABKIDS Chronic Generic Module
AU - Simeoni, Marie Claude
AU - Schmidt, Silke
AU - Muehlan, Holger
AU - Debensason, David
AU - Bullinger, Monika
AU - Petersen, Corinna
AU - Quittan, Michael
AU - Schuhfried, Othmar
AU - Orbicini, Delphine
AU - Thyen, Ute
AU - Müller-Godeffroy, Esther
AU - Vidalis, Athanasios
AU - Tsanakas, John
AU - Hatziagorou, Elpis
AU - Karagianni, Paraskevi
AU - Koopman, Hendrik
AU - Baars, Rolanda
AU - Chaplin, John Eric
AU - Power, Mick
AU - Atherton, Clare
AU - Hoare, Peter
N1 - Funding Information:
Acknowledgements The DISABKIDS project was supported by the European Commission (QLG5-CT-2000-00716) within the Fifth Framework Program ‘‘Quality of Life and Management of Living Resources’’.
Copyright:
Copyright 2011 Elsevier B.V., All rights reserved.
PY - 2007/6
Y1 - 2007/6
N2 - Objectives: The aim of this study was to shorten the Health-Related Quality of Life (HRQL) DISABKIDS Chronic Generic Measure (DCGM) for children and adolescents and to test its reliability, construct, and external validity. Study design: 1153 children and adolescents (8-16 years) with chronic health conditions (asthma, arthritis, epilepsy, cerebral palsy, diabetes, atopic dermatitis, cystic fibrosis) and their family were recruited from different paediatric clinical settings in seven European countries. A two-time assessment comprised reports on sociodemographics, health status and HRQL of children/adolescents. Results: The 37-item DCGM describes six dimensions (Independence, Physical Limitation, Emotion, Social Inclusion, Social Exclusion and Treatment) confirmed by Confirmatory Factor Analysis, multi-item scaling and item-goodness of fit to Rasch model. Internal consistency (Cronbach's alpha: 0.70-0.87) and test-retest reliability (ICC: 0.71-0.83) were satisfactory. Correlations between DCGM-37 and other HRQL instruments were the highest between dimensions evaluating similar concepts. Regarding discriminant validity of the DCGM-37, girls and older adolescents reported lower emotional we ll-being. Children belonging to families with low level of affluence and those with severe health conditions were found to have worse HRQL in all domains. Conculsion: Reliability, construct validity as well as convergent and discriminant validity of the DCGM-37 were shown.
AB - Objectives: The aim of this study was to shorten the Health-Related Quality of Life (HRQL) DISABKIDS Chronic Generic Measure (DCGM) for children and adolescents and to test its reliability, construct, and external validity. Study design: 1153 children and adolescents (8-16 years) with chronic health conditions (asthma, arthritis, epilepsy, cerebral palsy, diabetes, atopic dermatitis, cystic fibrosis) and their family were recruited from different paediatric clinical settings in seven European countries. A two-time assessment comprised reports on sociodemographics, health status and HRQL of children/adolescents. Results: The 37-item DCGM describes six dimensions (Independence, Physical Limitation, Emotion, Social Inclusion, Social Exclusion and Treatment) confirmed by Confirmatory Factor Analysis, multi-item scaling and item-goodness of fit to Rasch model. Internal consistency (Cronbach's alpha: 0.70-0.87) and test-retest reliability (ICC: 0.71-0.83) were satisfactory. Correlations between DCGM-37 and other HRQL instruments were the highest between dimensions evaluating similar concepts. Regarding discriminant validity of the DCGM-37, girls and older adolescents reported lower emotional we ll-being. Children belonging to families with low level of affluence and those with severe health conditions were found to have worse HRQL in all domains. Conculsion: Reliability, construct validity as well as convergent and discriminant validity of the DCGM-37 were shown.
UR - http://www.scopus.com/inward/record.url?scp=34247474438&partnerID=8YFLogxK
U2 - 10.1007/s11136-007-9188-2
DO - 10.1007/s11136-007-9188-2
M3 - Journal articles
C2 - 17404899
AN - SCOPUS:34247474438
SN - 0962-9343
VL - 16
SP - 881
EP - 893
JO - Quality of Life Research
JF - Quality of Life Research
IS - 5
ER -
