The phase of transition faces chronically ill youth and their families with enormous challenges. This phase bears numerous risks, such as the worsening of health. Under the project named "Growing-up with ModuS", a generic patient education program has been developed that is based on the modular ModuS patient education concept. It comprises a 1.5-day youth workshop, a unit for parents and an interactive web page. Its topics are the transfer to adults' medicine, social legislation, education/profession, and how to get self-reliant while living with a chronic condition. The program was tested with 14 different chronic health disorders under out-patient and in-patient care. The workshops were well accepted by the families and showed positive effects on the self-management. For the future, it is necessary to establish structures that offer similar support to many families in such a special phase of life.
|Translated title of the contribution||Growing-up with chronic disease. Fit for change: Transition training based on the modular education program ModuS|
|Journal||Atemwegs- und Lungenkrankheiten|
|Number of pages||8|
|Publication status||Published - 08.2016|