Erfassung und Verarbeitung von persönlichen Daten zur Evaluation von Krebsfrüherkennungsprogrammen - Ergebnisse einer Bevölkerungsbefragung im Kontext des Krebsfrüherkennungs- und -registergesetzes

Translated title of the contribution: Collection and processing of personal data to evaluate cancer screening programmes - Results of a survey of the German population in light of the bill 'early detection of cancer and cancer registries

F. Greiner*, S. Nolte, A. Waldmann, A. Katalinic, E. W. Breitbart

*Corresponding author for this work
1 Citation (Scopus)

Abstract

In a representative German sample, 62.1% of participants of cancer screening interventions indicated willingness to provide personal data for data-linkage with cancer registries. An agreement of over 90% is deemed necessary to conduct a meaningful population-based evaluation. The 'early detection of cancer and cancer regisÂ-tries' bill proposed a procedure based on the use of pseudonyms only. This way personal consent is not required but participants are granted the right to object.

Translated title of the contributionCollection and processing of personal data to evaluate cancer screening programmes - Results of a survey of the German population in light of the bill 'early detection of cancer and cancer registries
Original languageGerman
JournalGesundheitswesen
Volume75
Issue number11
Pages (from-to)751-753
Number of pages3
ISSN0941-3790
DOIs
Publication statusPublished - 18.10.2013

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