Abstract
In a representative German sample, 62.1% of participants of cancer screening interventions indicated willingness to provide personal data for data-linkage with cancer registries. An agreement of over 90% is deemed necessary to conduct a meaningful population-based evaluation. The 'early detection of cancer and cancer regisÂ-tries' bill proposed a procedure based on the use of pseudonyms only. This way personal consent is not required but participants are granted the right to object.
Translated title of the contribution | Collection and processing of personal data to evaluate cancer screening programmes - Results of a survey of the German population in light of the bill 'early detection of cancer and cancer registries |
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Original language | German |
Journal | Gesundheitswesen |
Volume | 75 |
Issue number | 11 |
Pages (from-to) | 751-753 |
Number of pages | 3 |
ISSN | 0941-3790 |
DOIs | |
Publication status | Published - 18.10.2013 |