Development and feasibility of an evidence-based patient education program for managing fatigue in multiple sclerosis: The "Fatigue Management in MS" program (fatima)

Maria Janina Wendebourg*, Lena Katharina Feddersen, Stephanie Lau, Sascha Köpke, Rona Moss-Morris, Christoph Heesen, Jana Pöttgen

*Corresponding author for this work
2 Citations (Scopus)

Abstract

Background: Multiple sclerosis (MS) is an inflammatory and neurodegenerative disease of the central nervous system. Fatigue is a common and disabling symptom, often causing decreased quality of life, social withdrawal, and unemployment. We developed and studied the feasibility of a cognitive-behavioral group intervention to manage fatigue in MS. We aimed to integrate the concepts of cognitive-behavioral therapy and evidence-based patient information. Methods: We conducted patient interviews and a focus group to assess patients' interest in and need for fatigue self-management training and developed the program accordingly. The program consists of six 90-minute modules, which were structured with the use of moderation cards, helping to guarantee treatment fidelity. The program was tested on three pilot groups (N = 16) in a rehabilitation center. Fatigue, depression, and coping self-efficacy were assessed at baseline and after the intervention. Acceptance and general satisfaction with the program were also evaluated. Results: Patient interviews elicited different characteristics of fatigue, suggesting that patients had different requirements. The program was very acceptable to patients. Pre-post assessments of the pilot study showed significantly improved scores on the Coping Self-Efficacy Scale (P = .013) but not on the Fatigue Scale for Motor and Cognitive Functions and the 30-item Inventory of Depressive Symptomatology. Conclusions: These preliminary results suggest that this program is a feasible cognitive-behavioral group training program that may improve coping self-efficacy and has the potential to subsequently reduce fatigue. The next step is evaluation of the program in a randomized controlled trial.

Original languageEnglish
JournalInternational Journal of MS Care
Volume18
Issue number3
Pages (from-to)129-137
Number of pages9
ISSN1537-2073
DOIs
Publication statusPublished - 01.05.2016

Research Areas and Centers

  • Research Area: Center for Population Medicine and Public Health (ZBV)

Fingerprint

Dive into the research topics of 'Development and feasibility of an evidence-based patient education program for managing fatigue in multiple sclerosis: The "Fatigue Management in MS" program (fatima)'. Together they form a unique fingerprint.

Cite this