Deutsche Akademie für Seltene Neurologische Erkrankungen: Konzepte und Struktur

Summary The German Academy of Rare Neurological Disorders (Deutsche Akademie für Seltene Neurologische Erkrankungen; DASNE) aims to pave the way for an optimized management of patients with rare neurological disorders. By bringing together experts in the field in a dynamic national network the DASNE, initiated by the Centers for Rare Diseases in Lübeck, Tübingen and Bonn, will continuously foster mutual exchange. Members of the DASNE are nationally and internationally renowned experts covering the whole spectrum and age range of rare neurological disorders including pediatric neurology. Through case presentations and discussion both at yearly meetings and on an internet platform the DASNE's main aims are to establish a German expertise and reference network for rare neurological disorders, to set up a web based platform for case conferences including patient videos and imaging data and to offer continuous medical education for younger academics in the field of rare neurological disorders.