Assessment of HL7 FHIR Interoperability Between EHR Systems and the Survivorship Passport v2.0 Platform to Generate Treatment Summaries for Childhood Cancer Survivors in Six Clinics: Preliminary Testing Results

Davide Saraceno; Catherine Chronaki; Giorgio Cangioli; Anna Liesa Filbert; Monica Muraca; Alessandra Berti; Rita Rielli; Nikos Thomopulos; Lisa Knoerr; Diana Walz; Anke Neumann; Andrea Beccaria; Anna Aulicino; Brigitte Nicolas; Giacomo Cavalca; Anne Uyttebroeck; Maria van Helvoirt; Tom Brié; Erik Vanden Meersch; Ruth Ladenstein; Edit Bardi; Günter Schreier; Stefan Beyer; Markus Müllner-Rieder; María Teresa Tormo Alcañiz; Lucas Cervero Beltran; Jelena Rascon; Monika Kapitančukė; Justas Trinkūnas; Eglė Stukaitė-Ruibienė; Paulius Ragauskas; Audronė Ciesiūnienė; Riccardo Haupt; Desiree Grabow

Assessment of HL7 FHIR Interoperability Between EHR Systems and the Survivorship Passport v2.0 Platform to Generate Treatment Summaries for Childhood Cancer Survivors in Six Clinics: Preliminary Testing Results

Davide Saraceno^*, Catherine Chronaki, Giorgio Cangioli, Anna Liesa Filbert, Monica Muraca, Alessandra Berti, Rita Rielli, Nikos Thomopulos, Lisa Knoerr, Diana Walz, Anke Neumann, Andrea Beccaria, Anna Aulicino, Brigitte Nicolas, Giacomo Cavalca, Anne Uyttebroeck, Maria van Helvoirt, Tom Brié, Erik Vanden Meersch, Ruth LadensteinEdit Bardi, Günter Schreier, Stefan Beyer, Markus Müllner-Rieder, María Teresa Tormo Alcañiz, Lucas Cervero Beltran, Jelena Rascon, Monika Kapitančukė, Justas Trinkūnas, Eglė Stukaitė-Ruibienė, Paulius Ragauskas, Audronė Ciesiūnienė, Riccardo Haupt, Desiree Grabow

^*Corresponding author for this work

Abstract

The Survivorship Passport (SurPass) for childhood cancer survivors provides a personalized treatment summary together with a care plan for long-term screening of possible late effects. HL7 FHIR connectivity of Electronic Health Record (EHR) systems with the SurPass has been proposed to reduce the burden of collecting and organizing the relevant information. We present the results of testing and validation efforts conducted across six clinics in Austria, Belgium, Germany, Italy, Lithuania, and Spain. We also discuss ways in which this experience can be used to reduce efforts for the SurPass integration in other clinics across Europe.

Original language	English
Title of host publication	Volume 316: Digital Health and Informatics Innovations for Sustainable Health Care Systems
Publication date	22.08.2024
Publication status	Published - 22.08.2024
Externally published	Yes

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

SDG 3 Good Health and Well-being

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Saraceno, D., Chronaki, C., Cangioli, G., Filbert, A. L., Muraca, M., Berti, A., Rielli, R., Thomopulos, N., Knoerr, L., Walz, D., Neumann, A., Beccaria, A., Aulicino, A., Nicolas, B., Cavalca, G., Uyttebroeck, A., van Helvoirt, M., Brié, T., Vanden Meersch, E., ... Grabow, D. (2024). Assessment of HL7 FHIR Interoperability Between EHR Systems and the Survivorship Passport v2.0 Platform to Generate Treatment Summaries for Childhood Cancer Survivors in Six Clinics: Preliminary Testing Results. In Volume 316: Digital Health and Informatics Innovations for Sustainable Health Care Systems

Saraceno, Davide ; Chronaki, Catherine ; Cangioli, Giorgio et al. / Assessment of HL7 FHIR Interoperability Between EHR Systems and the Survivorship Passport v2.0 Platform to Generate Treatment Summaries for Childhood Cancer Survivors in Six Clinics: Preliminary Testing Results. Volume 316: Digital Health and Informatics Innovations for Sustainable Health Care Systems. 2024.

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title = "Assessment of HL7 FHIR Interoperability Between EHR Systems and the Survivorship Passport v2.0 Platform to Generate Treatment Summaries for Childhood Cancer Survivors in Six Clinics: Preliminary Testing Results",

abstract = "The Survivorship Passport (SurPass) for childhood cancer survivors provides a personalized treatment summary together with a care plan for long-term screening of possible late effects. HL7 FHIR connectivity of Electronic Health Record (EHR) systems with the SurPass has been proposed to reduce the burden of collecting and organizing the relevant information. We present the results of testing and validation efforts conducted across six clinics in Austria, Belgium, Germany, Italy, Lithuania, and Spain. We also discuss ways in which this experience can be used to reduce efforts for the SurPass integration in other clinics across Europe.",

author = "Davide Saraceno and Catherine Chronaki and Giorgio Cangioli and Filbert, \{Anna Liesa\} and Monica Muraca and Alessandra Berti and Rita Rielli and Nikos Thomopulos and Lisa Knoerr and Diana Walz and Anke Neumann and Andrea Beccaria and Anna Aulicino and Brigitte Nicolas and Giacomo Cavalca and Anne Uyttebroeck and \{van Helvoirt\}, Maria and Tom Bri{\'e} and \{Vanden Meersch\}, Erik and Ruth Ladenstein and Edit Bardi and G{\"u}nter Schreier and Stefan Beyer and Markus M{\"u}llner-Rieder and \{Tormo Alca{\~n}iz\}, \{Mar{\'i}a Teresa\} and \{Cervero Beltran\}, Lucas and Jelena Rascon and Monika Kapitan{\v c}ukė and Justas Trinkūnas and Eglė Stukaitė-Ruibienė and Paulius Ragauskas and Audronė Ciesiūnienė and Riccardo Haupt and Desiree Grabow",

note = "Publisher Copyright: {\textcopyright} 2024 The Authors.",

year = "2024",

month = aug,

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language = "English",

booktitle = "Volume 316: Digital Health and Informatics Innovations for Sustainable Health Care Systems",

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Saraceno, D, Chronaki, C, Cangioli, G, Filbert, AL, Muraca, M, Berti, A, Rielli, R, Thomopulos, N, Knoerr, L, Walz, D, Neumann, A, Beccaria, A, Aulicino, A, Nicolas, B, Cavalca, G, Uyttebroeck, A, van Helvoirt, M, Brié, T, Vanden Meersch, E, Ladenstein, R, Bardi, E, Schreier, G, Beyer, S, Müllner-Rieder, M, Tormo Alcañiz, MT, Cervero Beltran, L, Rascon, J, Kapitančukė, M, Trinkūnas, J, Stukaitė-Ruibienė, E, Ragauskas, P, Ciesiūnienė, A, Haupt, R & Grabow, D 2024, Assessment of HL7 FHIR Interoperability Between EHR Systems and the Survivorship Passport v2.0 Platform to Generate Treatment Summaries for Childhood Cancer Survivors in Six Clinics: Preliminary Testing Results. in Volume 316: Digital Health and Informatics Innovations for Sustainable Health Care Systems.

Assessment of HL7 FHIR Interoperability Between EHR Systems and the Survivorship Passport v2.0 Platform to Generate Treatment Summaries for Childhood Cancer Survivors in Six Clinics: Preliminary Testing Results. / Saraceno, Davide; Chronaki, Catherine; Cangioli, Giorgio et al.
Volume 316: Digital Health and Informatics Innovations for Sustainable Health Care Systems. 2024.

Research output: Chapters in Books/Reports/Conference Proceedings › Conference contribution › peer-review

TY - GEN

T1 - Assessment of HL7 FHIR Interoperability Between EHR Systems and the Survivorship Passport v2.0 Platform to Generate Treatment Summaries for Childhood Cancer Survivors in Six Clinics: Preliminary Testing Results

AU - Saraceno, Davide

AU - Chronaki, Catherine

AU - Cangioli, Giorgio

AU - Filbert, Anna Liesa

AU - Muraca, Monica

AU - Berti, Alessandra

AU - Rielli, Rita

AU - Thomopulos, Nikos

AU - Knoerr, Lisa

AU - Walz, Diana

AU - Neumann, Anke

AU - Beccaria, Andrea

AU - Aulicino, Anna

AU - Nicolas, Brigitte

AU - Cavalca, Giacomo

AU - Uyttebroeck, Anne

AU - van Helvoirt, Maria

AU - Brié, Tom

AU - Vanden Meersch, Erik

AU - Ladenstein, Ruth

AU - Bardi, Edit

AU - Schreier, Günter

AU - Beyer, Stefan

AU - Müllner-Rieder, Markus

AU - Tormo Alcañiz, María Teresa

AU - Cervero Beltran, Lucas

AU - Rascon, Jelena

AU - Kapitančukė, Monika

AU - Trinkūnas, Justas

AU - Stukaitė-Ruibienė, Eglė

AU - Ragauskas, Paulius

AU - Ciesiūnienė, Audronė

AU - Haupt, Riccardo

AU - Grabow, Desiree

PY - 2024/8/22

Y1 - 2024/8/22

N2 - The Survivorship Passport (SurPass) for childhood cancer survivors provides a personalized treatment summary together with a care plan for long-term screening of possible late effects. HL7 FHIR connectivity of Electronic Health Record (EHR) systems with the SurPass has been proposed to reduce the burden of collecting and organizing the relevant information. We present the results of testing and validation efforts conducted across six clinics in Austria, Belgium, Germany, Italy, Lithuania, and Spain. We also discuss ways in which this experience can be used to reduce efforts for the SurPass integration in other clinics across Europe.

AB - The Survivorship Passport (SurPass) for childhood cancer survivors provides a personalized treatment summary together with a care plan for long-term screening of possible late effects. HL7 FHIR connectivity of Electronic Health Record (EHR) systems with the SurPass has been proposed to reduce the burden of collecting and organizing the relevant information. We present the results of testing and validation efforts conducted across six clinics in Austria, Belgium, Germany, Italy, Lithuania, and Spain. We also discuss ways in which this experience can be used to reduce efforts for the SurPass integration in other clinics across Europe.

M3 - Conference contribution

BT - Volume 316: Digital Health and Informatics Innovations for Sustainable Health Care Systems

ER -

Saraceno D, Chronaki C, Cangioli G, Filbert AL, Muraca M, Berti A et al. Assessment of HL7 FHIR Interoperability Between EHR Systems and the Survivorship Passport v2.0 Platform to Generate Treatment Summaries for Childhood Cancer Survivors in Six Clinics: Preliminary Testing Results. In Volume 316: Digital Health and Informatics Innovations for Sustainable Health Care Systems. 2024