Patients suffering from amyotrophic lateral sclerosis (ALS) require comprehensive aids for mobility, communication, nutrition, ventilation and other care elements. They receive support from a variety of stakeholders. Coordination of the various partners is a complex matter and subject to high barriers. AmbulanzPartner (AP) provides persons afflicted with ALS and all players involved with a network for the coordinated provision of assistive devices and therapies combining case management and the internet portal AmbulanzPartner.de in a hybrid product concept. AP reduces the existing interfaces in ALS care. The internet portal AmbulanzPartner.de serves as an "electronic health recordo" and "management platformo" liaising between patients, next of kin, doctors and providers while making all care processes discernible. AP is designed to facilitate the provision of assistive devices and therapies and to avoid inappropriate health care. The management portal has been in operation since April 2011. Up to March 2 013, 2 363 patients and 15 867 assistive devices and therapies have been coordinated. The captured data are designated for health-care research and offer an insight into care processes for different clinical and sociomedical constellations as well as a comparative consideration of arrays of assistive devices and insurance companies. Use of the internet portal AmbulanzPartner.de is based on a "shared valueo" principle revenue model: patients, next of kin, doctors and sociomedical partners, may use of the portal free of charge whereas the entrepreneurial stakeholders (e. g., providers of assistive devices) are integrated into a licensing model. AP embraces a generic approach and scalability so that - based on ALS - transferability to other complex neurological conditions is given.
|Translated title of the contribution||Ambulanzpartner - Health-care management programme for ALS|
|Number of pages||8|
|Publication status||Published - 2013|
Research Areas and Centers
- Centers: Center for Neuromuscular Diseases