ELLY: Cross-sectional survey on the prevalence of long-term endocrinological effects in patients with brain tumours or lymphoma

In Germany, around 470,000 people are diagnosed with cancer every year. Thanks to improved early detection and treatment options, survival rates have increased significantly in recent years. Current estimates suggest that there are currently around 2-3 million people in Germany who have survived cancer.
The results of studies from other countries indicate that a significant proportion of patients suffers from long-term effects of their treatment. Long-term effects include, for example, osteoporosis, metabolic problems, infertility or a lack of growth hormones. These effects occur particularly when the cancer occurred at a young age, when anti-hormone treatment or radiation of the neck region was performed. In Germany, it is not known what proportion of people with a history of brain tumours or lymphoma suffer from long-term endocrinological effects. Furthermore, it is not known how and by whom these people receive medical care.