TY - JOUR
T1 - EUSTAR biobanking: Recommendations for the collection, storage and distribution of biospecimens in scleroderma research
AU - Beyer, Christian
AU - Distler, Jörg H.W.
AU - Allanore, Yannick
AU - Aringer, Martin
AU - Avouac, Jérôme
AU - Czirják, László
AU - Cutolo, Maurizio
AU - Damjanov, Nemanja
AU - Galdo, Francesco Del
AU - Fligelstone, Kim
AU - Guiducci, Serena
AU - Kowal-Bielecka, Otylia
AU - Van Laar, Jacob M.
AU - Martucci-Cerinic, Marco
AU - Müller-Ladner, Ulf
AU - Riemekasten, Gabriela
AU - Tarner, Ingo H.
AU - Tyndall, Alan
AU - Kennedy, Ann Tyrrell
AU - Valentini, Gabriele
AU - Vettori, Serena
AU - Walker, Ulrich A.
AU - Denton, Christopher
AU - Distler, Oliver
N1 - Copyright:
Copyright 2011 Elsevier B.V., All rights reserved.
PY - 2011/7
Y1 - 2011/7
N2 - The European League Against Rheumatism Scleroderma Trials and Research Group (EUSTAR) has established an online database with clinical data of currently more than 8200 patients with systemic sclerosis (SSc). In addition to clinical research, EUSTAR fosters biomolecular studies to develop novel biomarkers and therapies for SSc. High-quality biospecimens are the basis for successful biomolecular studies. The EUSTAR biobanking group has therefore developed recommendations to standardise the collection, storage and distribution of SSc biospecimens at EUSTAR centres. These recommendations consider the scientific challenges associated with biomolecular research in SSc and the organisational requirements of EUSTAR. They were approved by the EUSTAR executive committee as well as the EUSTAR board. Once they become effective, these recommendations will be the basis for international EUSTAR studies with large numbers of SSc biospecimens. These recommendations might also be followed by other SSc consortia to enable exchange of biosamples between different SSc initiatives and might serve as a template for biobanking initiatives in other rheumatic diseases.
AB - The European League Against Rheumatism Scleroderma Trials and Research Group (EUSTAR) has established an online database with clinical data of currently more than 8200 patients with systemic sclerosis (SSc). In addition to clinical research, EUSTAR fosters biomolecular studies to develop novel biomarkers and therapies for SSc. High-quality biospecimens are the basis for successful biomolecular studies. The EUSTAR biobanking group has therefore developed recommendations to standardise the collection, storage and distribution of SSc biospecimens at EUSTAR centres. These recommendations consider the scientific challenges associated with biomolecular research in SSc and the organisational requirements of EUSTAR. They were approved by the EUSTAR executive committee as well as the EUSTAR board. Once they become effective, these recommendations will be the basis for international EUSTAR studies with large numbers of SSc biospecimens. These recommendations might also be followed by other SSc consortia to enable exchange of biosamples between different SSc initiatives and might serve as a template for biobanking initiatives in other rheumatic diseases.
UR - http://www.scopus.com/inward/record.url?scp=79957646839&partnerID=8YFLogxK
U2 - 10.1136/ard.2010.142489
DO - 10.1136/ard.2010.142489
M3 - Scientific review articles
C2 - 21285118
AN - SCOPUS:79957646839
SN - 0003-4967
VL - 70
SP - 1178
EP - 1182
JO - Annals of the Rheumatic Diseases
JF - Annals of the Rheumatic Diseases
IS - 7
ER -
